Dietary Management
The PWS characteristics of over-eating (hyperphagia) and low muscle tone (hypotonia) mean that weight can be gained very easily by both children and adults with PWS, although in the very early months of life, babies with PWS may struggle to feed and gain weight. However, with good dietary management and restricting access to food, weight can be kept within normal levels for both children and adults.
The following links are sections from the PWS Journey. Families can obtain a hard copy of the whole PWS Journey, which is updated as their child reaches the next age range, by becoming a member of PERSATUAN SINDROM PRADER-WILLI MALAYSIA
Dietary management
- Dietary management for your child (click here to find information specific to your child's age)
- Dietary management for adults with PWS
- Dietary management for your child (click here to find information specific to your child's age)
- Dietary management for adults with PWS
Exercise and Physiotherapy
Exercise is very important for both children and adults with PWS. It helps burn calories as well as improving muscle tone. Infants and young children with PWS are often offered physiotherapy to help develop their muscles. The links above for dietary management also contain some information about exercise, as does the following:
Exercise and Physical Activity for Children with Prader-Willi syndrome – Children’s Nutrition Research Centre (PDF)
Exercise for people with Prader-Willi syndrome - Famcare/IPWSO (PDF)
Exercise is very important for both children and adults with PWS. It helps burn calories as well as improving muscle tone. Infants and young children with PWS are often offered physiotherapy to help develop their muscles. The links above for dietary management also contain some information about exercise, as does the following:
Exercise and Physical Activity for Children with Prader-Willi syndrome – Children’s Nutrition Research Centre (PDF)
Exercise for people with Prader-Willi syndrome - Famcare/IPWSO (PDF)
All about Me
'All About Me' (PDF) is a resource that can be used to inform others working with or caring for your son or daughter about their needs - you can adapt it to fit your personal circumstances.
'All About Me' (PDF) is a resource that can be used to inform others working with or caring for your son or daughter about their needs - you can adapt it to fit your personal circumstances.
Further Information
Need to know Nutrition for children with Prader-Willi Syndrome – Children’s Nutrition Research Centre (PDF).
Information for Dietitians (PDF)
Need to know Nutrition for children with Prader-Willi Syndrome – Children’s Nutrition Research Centre (PDF).
Information for Dietitians (PDF)
